Masticatory Muscle Myositis

Dog Food Advisor Forums Diet and Health Masticatory Muscle Myositis

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  • #80699 Report Abuse
    Ysabella J
    Member

    Hey everyone!

    I know this is mainly a forum for dog nutrition but I am branching out looking for information. I will try to make this as short as possible. About a month ago, Reese (our 4 & a half year old Golden) was outside playing with a stick and came back to me crying. I examined her mouth and didn’t find anything. For the next few days she was very sore when opening her mouth too wide. Took her to the vet and they sedated her and checked her mouth and did X-rays with everything returning normal. She was put on meloxicam and the doctor warned me about MMM. She quickly got better and wasn’t as sore but I noticed she still wouldn’t open her mouth all the way when yawning and seemed to be careful when picking up balls. Another vet said it could be TMJ and to continue the nsaid for another week. Other than not being able to fully yawn, she seemed to be completely fine. Eating fine, no drool, no whining, etc. I talked to the vet and they recommended sending out the 2M antibody test and starting prednisone. I did some of my own research and decided to get a 2nd opinion from the holistic vet first. Only thing is, she was booked out 3 weeks. In the meantime, we were careful with her jaw. No bones or chewing and no ball playing. She didn’t get any worse and I once again only noticed her yawn being off. Fast forward, Reese had her initial appointment last week and the doctor there agreed with MMM. Said the muscles around her jaw bone felt almost non-existing. She also commented on how her cheek muscles looked like they were slightly sunken in. We sent out the 2M antibody test and it came back as a borderline antibody titer and they recommend a muscle biopsy to confirm. Vet agrees with me that since her symptoms aren’t terrible that we will wait to do this since it is an invasive procedure. The holistic vet decided to put her on chinese herbs and supplements. We are also doing acupuncture weekly (for now). She said at this point since her only symptom seems to be her yawning and muscle atrophy that we don’t need to put her on prednisone, or NSAIDs. If it gets worse, we may have to. I will do anything before turning to the steroids. We are reluctant that we caught it before it progressed but doc says no vaccines or toxins that can trigger a reaction since it’s an auto immune disease. We already had been feeding partially raw and Orijen kibble which we will continue to do. She has had two acupuncture sessions and has been on the supplements for one week and I haven’t noticed improvement, but she’s also not doing worse. Anyone have any recommendations or have been through this? I read it is common in the breed but I had never heard of this disease until now. Any advice is much appreciated from me and my girl. Thanks from the both of us!

    #80702 Report Abuse
    anonymously
    Member

    If it was my dog, I would take the dog to a board certified Internal Medicine Specialist (if you are not doing so already)
    Excerpts from article below: http://www.marvistavet.com/html/body_masticatory_myositis.html

    “Results of treatment are best early in the course of the disease. If the disease has progressed to an advanced state before treatment is initiated, there may be no response”.

    “In short, treatment is suppression of the immune system usually through high doses (rather than the more commonly used lower “anti-inflammatory” doses) of prednisone or dexamethasone. High doses should be maintained until the jaw seems to open normally. After that, the dose may be gradually tapered over 6 months. In many cases the drug cannot ever be completely stopped”.

    #80706 Report Abuse
    Susan
    Participant

    Hi Ysabella, Reese is very lucky to have you for a mum & I think your doing the right thing with Reese…. Prednisone is an awful drug, fixes 1 thing & can cause a heap of other health problems…..Do you belong to any Golden Retriever clubs or groups on Face Book…….I googled “Golden Retriever groups” & there’s a few clubs or groups on Face Book, join & ask if anyone else has a dog has M.M.M but write in full what the MMM stands for…..see what other people did & what seems to work…..do you think the kibble is OK to chew being hard, does she chew her kibble or just swallow? I was soaking Patches kibble in warm water then when it was soft, I fully drained all water & even squeezed out as much water as I could then I put the soft kibble in a blender & just blended for a few sec to break up the swollen kibble….

    #80721 Report Abuse
    anonymously
    Member

    “The holistic vet decided to put her on chinese herbs and supplements. We are also doing acupuncture weekly (for now)”.

    Masticatory Muscle Myositis is a very serious condition, if it was my dog, I would be inclined to take a much more aggressive approach based on conventional medicine. Prednisone can be a very effective medication when used under the supervision of a specialist.
    Sometimes steroids are necessary…..

    #80740 Report Abuse
    Ysabella J
    Member

    Thank you everyone for the feedback, it is much appreciated. First and foremost, I am curious as to why an internal specialist is being recommended? In this disease, western medicine’s only recommendation is steroids.. That is why we branched out. The holistic vet we see did say, if she doesn’t respond to the treatment she is on, that steroids will be necessary and I understand that. But we are trying to avoid that at all costs. I have read about many dogs with this disease who did much worse on the prednisone and ended up having liver damage. Liver damage is irreversable and if I don’t have to put my girl through that, I wont. Our regular vet also agrees with waiting on starting prednisone, for now. As Susan stated, sometimes the cure is worse than the disease. I know this is much different but I saw my brother die of stage 4 cancer MUCH faster because of chemotherapy. I have branched out onto the Golden Retriever Forum and many dogs have done wonderfully with chinese herbs, and acupuncture. So, that is why we started there. Once again, I am very grateful for any and all feedback 🙂

    #80742 Report Abuse
    anonymously
    Member

    Best of luck.

    PS: Keep In mind, that the people you are taking advice from on these anonymous forums often are not veterinary healthcare professionals, and may be giving you incorrect information.
    (myself included)

    #80743 Report Abuse
    Ysabella J
    Member

    Anon I am much aware of that. I was hoping someone would have experienced this or was familiar with this and would have some input. I know it’s probably a one in a million chance, but if I find something that might be able to help, it will be worth it!

    #112259 Report Abuse
    KIM C
    Member

    My 2 1/2 year old female Dalmatian had a preliminary diagnosis of MMM today. We are awaiting results of blood test to return in 7-10 days before starting steroids as this can cause a false result in the testing. I am searching for other owners that are going through the same thing with their pet. I am hoping to get some ideas as to what I can feed her to help her through this difficult time. She can not eat kibble and will barely eat canned food. She can barely open her mouth and basically has to squish her nose down into the bowl and that spreads her lips back far enough for her teeth to gently grab a morsel of food. It’s heartbreaking to watch. She began taking her treats very slowly about 2 weeks again or not wanting them at all. I didn’t notice a change in her eating because I own several dogs and assumed she was eating her food because the bowls were always empty. I was away on vacation for 7 days last week so I wasn’t present to see any regression in eating. I own a boarding and grooming facility, and had my kennel manager taking care of my dogs inside my home for me while away. She didn’t notice any changes either, but often fed my dogs then went back outside to the kennel facility that I have located on the property where I live.
    I feel horrible that my poor Penelope may have suffered in extreme pain for almost 2 weeks with out anyone noticing her pain. I only discovered one of her symptoms late Sunday night while petting and rubbing her head, I felt extremely large knots under her cheeks. When I tried to open and look into her mouth for any foreign body or an abscessed tooth, she whined in pain and pulled away. That’s when I realized that she wasn’t able to open her mouth. I separated her from my other dogs and tried giving her some canned food. That’s when I saw her inability to hardly open her mouth and get the food inside. Normally she would gobble down soft food because she is on a hard kibble diet with only a tablespoon of canned mixed with it.

    Does anyone have any suggestions as to what I can feed her while awaiting results to start the prednisone? I tried wetting the soft food down to make a gruel and she won’t eat that either? PLEASE HELP me find a solution, so she doesn’t develop anorexia as well. The Vet just told me to soften her kibble, but that is NOT going to work!

    #112262 Report Abuse
    Susan
    Participant

    Hi Kim,
    So sorry for your girl, it sounds awful, I dont know anything about MMM…
    About making her eat, I wouldn’t push her head into the bowl of food, instead get a spoon & sppon soft blended food in side of her mouth under her to lip, like you do when giving syringed water also start her on electrolytes with water, give every hour if she isnt eating or drinking water…..Do you live America? I live Australia & we have a really good dehydrated raw food called “Fronteir Pets” it has no bone, smells beautiful & is human grade ingredients, the meat is free range chickens, pigs or cows, I smash the balls up then add water & the food all softens up & the dog or cat can just lick up the food or it can be put into a big 20ml syringe & put in the side of your dogs mouth slowly push syringe…
    Can you find a dehydrated food like “Honest Kitchen” Zeal or Hope formula, there’s a few formula’s with grains or no grains, higher in fat higher in fiber & some are higher in protein you need to look at the ingredients & see which formula will suit your girl, Honest Kitchen has samples you can try, if she takes a steriod, then look for a lower fat diet cause of the acid reflux & ulcers steriod can cause, the vet put my dog on a ant acid med before 1/2 hour before he took the steriod with food to be on the safe side… you add water & the Honest kitchen reconstitutes or can you get some sweet potatoes peel & boil also get some lean chicken breast or turkey mince & cook then put 1/2 sweet potato & 1/2 meat into a blender & blend, this will be easier to eat & spoon into side of mouth if she cant lick up food, even cottage cheese is good, scrambled egg, Predisone can cause acid reflux so your girl will have to have food in her stomach first then take the predisone mash into a bit of sweet potato or pumkin….
    Have you looked on facebook for any groups for Canine Masticatory Muscle Myositis or Yahoo also has groups best to talk with people who have dogs that are going thru the same health problems also find a vet or a holistic vet that knows all about MMM cause the only way to eat soften kibble is make the kibble soft then drain out all the water, I use to 1/2 the swollen kibbles in the bowl then cuff my hand over side of bowl & kibble & squeeze out all the water then I put swollen kibbles in a blender & blended in sections, the kibble would fluffed up, it depended on which kibble I used, some brands of kibble when I soaked in water then drained all the water then put in the blender the kibble turned to goo I suppose if she can lick she can lick it up, another food people feed is baby food..

    #112264 Report Abuse
    anonymous
    Member

    Try mixing the wet food or kibble soaked overnight in plain chicken broth or water and a little bit of chopped up bland boiled chicken meat.
    https://www.dogfoodadvisor.com/forums/topic/grain-free-2/#post-109751
    I am not familiar with MMM, It sounds awful. Work closely with your vet and consider asking for a referral to a veterinary internal medicine specialist.
    If it is within your means, I would go right to the specialist .

    #112265 Report Abuse
    anonymous
    Member

    PS: A side effect of prednisone is increased appetite and weight gain, so keep an eye open for these symptoms once started.

    #168949 Report Abuse
    Brenda V
    Participant

    Hi Ysabella
    Not sure if you are still on this site. I know it was 2015 when you weren’t sure if your dog had Masticatory Muscle Myositis. What even happen?
    I have a dog that might have Masticatory Muscle Myositis waiting on the blood work

    #172021 Report Abuse
    liz B
    Participant

    I am pretty sure our dog has it. We just drew blood for the 2m antibody blood test and started her on a high dose of prednisone as early treatment is likely to yield a better outcome. I also found that benadryl helps. Not sure if an allergy of some sort is triggering this for her. The first time she could not open her jaw and her eye was swollen we did benadryl with an anti-inflammatory for 2 week and she healed great. This time her jaw is not as bad but her head above her eyes and around her jaw are sunken in which prompted me to ask for the 2m blood test and the prednisone. I am still giving her benadryl as well. Looking for a specialist/immunologist in my area while we await the results for the blood test. I know steroids are not the best but I have had dogs all my life and some have had to take them for one reason or another and never had any issues as we monitored the use. I am curious about a special diet for this if anyone has experience with it.

    #172040 Report Abuse
    Patricia A
    Participant

    Liz I’m so sorry if she has this disease because from what I read it will be very painful. This usually presents itself at a young age. (The condition occurs in males and females, with an average age of onset of 3 years, though puppies as young as 4 months have been affected. Fortunately, if MMM is diagnosed early, dogs can be treated to increase the likelihood of a full recovery. Research of this disease at the University of California-San Diego led to the development of a blood test in 2004 that detects the presence of 2M antibodies and accurately identifies affected dogs.)
    Does she fall into this age group? Also mostly effects jaw but you said jaw is not as bad. It causes extreme pain when trying to eat?
    Was allergies and dental issues ruled out? I know scented candles or even bedding or carpet cleaners can be extremely toxic to dogs and exhibit severe allergic reactions.
    Keep updating and hope she ends up not being diagnosed with this.

    #172047 Report Abuse
    liz B
    Participant

    Thanks Patricia. We are waiting for the results of the 2m blood test. In the meantime her vet started her on prednisone but I’m concerned because while her jaw has gotten better, her muscle above her eye and on the side of her jaw has become significantly worse sunken in and I’m not sure if the prednisone is making this worse of helping. I’m searching for a holistic vet near me. I feel like someone out there has the right answers, I just need to find them. She’s only 1 1/2 years old and otherwise fine. All her other blood tests were normal. She’s energetic and eats just fine.

    #172189 Report Abuse
    Kourtney H
    Participant

    While attending Veterinary Assisting school I had the opportunity of externing at a local clinic. About three weeks in, on the saturday after unfortunately having to say good bye to my husbands cat of 23 years, a lady came in with a gorgeous Blue Fawn Pitbull. She had said that he was wandering the highway with nothing but a bare red collar, he was friendly enough to get in her car and we were the closest animal care center she could find. We immediatly checked for a chip and upon doing so found two phone numbers attached to his. The first call we got an answer but just as soon as they picked up and we identified who we were the call was disconnected. With no information about this dog besides two phone numbers that no one was answering and the Saturday coming to a close, with noone to be coming in on Sunday because we were always closed that day…. Someone had to take this dog home and since everyone else had cats or a no pets allowed policy where they were living it was either me or animal control. I couldnt bare to see this beautiful boy whose demeanor was so relaxed and happy just waiting for what ever was coming next be sent to where they possibly were just going to euthanize him because of his breed. So when we were all cleaned up and ready to go, I grabbed a couple of blankets a bag of food and a leash and the newly nick named ” Doo Doo” and I were off. For two weeks we attempted to call the numbers associated with his chip to no avail. And the more time that passed the closer Doo Doo and Jacob got. We ended up discussing a more permanent name for him and decided that Uthred was a good fit. So as a dog named after a Northumbrian Elderman with a similar past as his, Uthred became JAcobs emotional support dog and best friend who helped combat his anxiety. As soon as He felt Jake begin to feel overwhlemed and worked up he would quite literally force himself into Jake’s lap and would just stare into his soul and like the flip of a switch Jake was calm, and anxiety free. It was a beautiful thing to see this relationship grow and see both of them benefit in such giant ways from one another. Now that you know the back story to our unique situation I would like to bring you up to speed on our unfortunate happenings as of the last four or five months.

    Things have been pretty much the complete opposite of our first 4 months with him. One day after bathing Uthred I was drying him off with a towel and he was VERY anxious and obviously uncomfortable. Later that day he was laying down in his bed and I was cleaning the room when I came across his favorite blanket, as I went to hand it to him he quickly growled and lunged at me. Completely shocked and taken a back I stood there as his growl continued until my mind gathered everything that just occurred and took a step back. I was so confused and when Jake got home from from work he was in disbelief. We were thinking he possibly was abused in his last living situation and maybe my simple actions caused him an episode of PTSD. Well once this happened it only got worse. Soon enough I was no longer able to touch him, walk by him, or even look at him without him fiercely growling at me. This drastic turn in events not only took a toll on me but my marriage as well. As Jacob was still able to continue his relationship with Uthred. Soon I wasn’t even able to touch Jacob without this very powerful dog snapping at me. Which led me to believe maybe he is displaying possessive or territorial aggression. That was until he started displaying this behavior toward Jacob as well! To this date I have been bitten/ nipped at twice and while sitting on the ground he has out of nowhere lunged at my face, luckily Jacob’s quick actions caught him just before he would have got me. As for Jake, on three separate occasions he has been bitten three times with two out of the three drawing blood. Confused and distraught, we were unsure what to do next. We tried everything we could think of until we finally decided to take him to the Vet on May 27th 2021 for the aggression he was continuously displaying. They prescribed him with gabapentin and gave him his vaccinations and sent us on our way. While it seemed to ease his anxiety the side effects started to worry us as he just became more and more lethargic. Then we started noticing that he was losing weight. A lot of weight. His appetite was there but very little. The place we started noticing it most was in his head more specifically his chewing muscles. We looked up the symptoms of what we had been noticing like how he was no longer wanting to go for walks, play ball, or chew on any toys along with when he would try he would cry and spit what ever it was that he had out of his mouth.. that and many other things are what brought us to the conclusion that it was masticatory muscle myositis. I took him to the vet and they were shocked to see the rate at which his condition was declining. It was only two weeks from the vet visit where we got the Gaba and his vaccinations to the next appointment where he was just a completely different dog. The vet agreed with us as to what the diagnosis was and she prescribed prednisone. Day one he was great almost like he was going back to normal same with day two then day three he started declining again at a quicker rate… now we are to tonight June 16th he looks horrible is beginning to have a difficult time drinking water. I am at a loss and have no idea what to do. I am so overwhelmed by my own emotions not to mention the flood wall that I am absorbing from Jacob. I read a few things in a forum where people had the same thing occur a week after the rabies shot was administered. Im wondering if that has anything to do with this . also anyone know what kind of diet might help?

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