[Dennis M]

We had two options – Keppra extended release to be given every day twice a day to prevent seizures but the trial period to see if it helped was three to four months. Doc said efficacy over time decreases. Jake can go a few months at times between seizures so we opted for giving him Keppra regular (rapid release) only when he has a seizure. It has worked well the two times since April that he’s had these seizures. It takes an hour or two to start working but it eventually does and we dont have to stay up all night with him. He literally wouldn’t sleep with these seizures and would be up all night gulping and swallowing, sometimes vomiting. And then usually more gulping into the next day and gradually stop – lasting a total 48 hours of varying degree. Just awful. The side effect of the Keppra is it makes him very drowsy and he isn’t very coordinated “on his feet” – but doc said that is normal side effect of the meds. So he sleeps really well during the night. We have to watch him carefully due to the drowsiness but it’s a better alternative. If the seizures you experience are only a few minutes or less than an hour that might be consideration for the preventative route rather than the “pulsed” therapy we do.

• This reply was modified 9 years, 7 months ago by Dennis M.
• This reply was modified 9 years, 7 months ago by Dennis M.