Hi Jared, sorry to say I don’t have an update that will help you. I lost my boy a month ago to the IMTP. He went through 4 bouts of IMTP from 2017-2020 and during that time, his lipase levels were like a rollercoaster.
I’ve charted all of his bloodwork in Excel (there was a lot of it given the IMTP) and he had an abnormal CPL (the pancreas-specific lipase test, as the poster above mentions) for pretty much all of 2017. He did have drug-induced pancreatitis at one point that we had to hospitalize him for since it coincided with an IMTP relapse, but he wasn’t symptomatic any other time throughout his life and he still had these high levels that would rise and fall. He was on a ton of medication for the IMTP but his pancreatic levels didn’t coincide with the level of drugs he was on for that, with the exception of the one instance where it was drug induced. He had so much testing done for other things, with numerous abdominal ultrasounds and CT scans included, and nothing on his pancreas was ever noted. We were very strict about giving him only low-fat foods, too. It was quite the head scratcher but luckily never turned into too much of an issue.
1 month, 3 weeks ago
