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Reply To: Desperate for help! Vomits every day :(

#47277 Report Abuse

Thanks guys-its bad news, but we are hopeful that she does not show symptoms until much later in life and that through medication(when symptomatic) we will be able to prevent progression to chronic heart failure and she will lead a long ‘normal” life. She has been on fish oil forever due to the first problem, and I am going to add in Co q 10 “just because”